Asda staff in the town Burton-on-Trent are hosting a bingo night this Sunday (January 11th) at 7pm to raise money for ‘Nina’s Need’. The appeal is dedicated to raising money for Ehlers-Danlos Syndrome sufferer Nina Parsons.
Burton’s Bingo night will take place at the town’s rugby club, generously donated as a free venue for the event. Further events are planned throughout the year to continue raising money for Nina’s Need, including a Valentine Fundraising Ball on the 8th of February at Burton Albion Football Club.
Over the years, bingo nights have proven to be a fantastic way to raise money for good causes. Previously, there was a great deal of money raised (over £200 per night) at a long series of bingo events ran by The Food Chain, who provide home delivered meals, groceries, cookery classes, communal lunches and dietetic advice to people living with HIV in London. Another success story comes from the Lochcarron community, who raised a fantastic sum for the Kirkton Woodlands and Heritage group on the 21st of February 2014.
Organisers could charge an all in price for the evening, which would include a card for every game and refreshments. Others prefer to charge per game. Also, there is usually the option for guests to purchase extra cards as a way of working closer towards the night’s fundraising goal.
Nina Parsons is a make-up artist, age 30, who lives locally in Burton-on-Trent, Staffordshire, and is very popular within the local community. She first noticed a problem at age 23, when she was diagnosed with type 1 diabetes. She then began to experience further symptoms associated with Irritable Bowel Syndrome and migraines, until eventually Ehlers-Danlos Syndrome was officially recognised.
Nina’s condition weakens the collagen in her body, ultimately resulting in the neck not being anywhere near strong enough to hold her head up. Therefore, her brain stem is being slowly crushed by pressure from her skull, leaving her in daily pain as her head sinks further and further into her body.
Nina Parsons’ condition is so severe that she has shrunk an inch and a half in the last two years – dropping from 5ft 5½in to just 5ft 4in. As such, she desperately requires a lifesaving operation to recover from the illness. After losing her battle with the NHS to have treatment here, the ‘Nina’s Need’ appeal was created to fund an £70,000 operation in America. Any extra funds raised will go to others like Nina who battle Ehlers-Danlos Syndrome.